The company's core activity is the research and development of treatments for the rare skin disease Epidermolytic Ichthyosis (EI), particularly through the funding of research projects and the support of scientists in this field. As a non-profit organization, the company aims to collect donations and grants for EI research and to implement the research results into clinical practice.
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Research on Epidermolytic Ichthyosis
Research funding for preclinical and translational projects, including PhD studentships and post-doctoral projects, focusing on gene editing, drug repurposing, and clinical application.
Research Grant Applications
Grant applications for preclinical and translational research projects with clinical benefits for people affected by Epidermolytic Ichthyosis; funding amounts and application documents are described online.
Support and information for living with EI
Personal accounts, day-to-day support, and information on challenges, family, school, work, and self-management for people with Epidermolytic Ichthyosis and their relatives.
EI Resources
Free, downloadable resources on EI skin care, as well as selected publications and specialist links for patients, relatives, and professionals.
EI Skincare Series
An information series with multiple episodes on skin-care products and care concepts for EI, including bath additives, emollients, urea gel, humectants, and antimicrobial care.
Awareness and community campaigns
Awareness activities and participatory campaigns such as the Reps for Rare Dance Challenge, story prompts, panel discussions and school events to raise awareness of EI and rare diseases.
Podcasts and video interviews
Video-based conversations with the founder, researchers, patients, and supporters about EI, research, everyday life, fundraising, and awareness.
Fundraising and donation acceptance
Donation options via Swiss, British, American, and Canadian channels to finance research and the association’s work.
Swiss Shop
Merchandise shop with bags, T-shirts, and sports shirts; orders are currently available only in Switzerland, with shipping abroad on request.
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