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© 2026 cohaga AG · All Rights Reserved · St. Gallen, Switzerland · Imprint745,194 companies indexed · Last updated: today
DirectoryAssociations & Interest GroupsNGOs & NPOsUsterKINDER MIT SELTENEN KRANKHEITEN- GEMEINNÜTZIGER FÖRDERVEREIN
KINDER MIT SELTENEN KRANKHEITEN- GEMEINNÜTZIGER FÖRDERVEREIN Logo
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KINDER MIT SELTENEN KRANKHEITEN- GEMEINNÜTZIGER FÖRDERVEREIN

Summary

About the company

The company's core activity is to support and promote families with children suffering from rare diseases. This includes providing information, organizing events and activities, supporting self-help and raising awareness of the needs of those affected. The association also offers crowdfunding and donation opportunities to finance its activities.

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Parent & Family Associations
✓ Offered10
Financial support for affected families
Financial assistance for families with rare diseases, in particular for therapies, medical aids and mobility aids when costs are not covered by the IV or health insurance.
KMSK Family Network
Free admission to a family network for parents affected by rare diseases, with exchange, mutual support and access to further offerings such as family events and an online self-help group.
KMSK Family Events
Free family events for children with rare diseases and their relatives, with shared experiences, exchange with other families and relief in everyday life.
KMSK Knowledge Forum on Rare Diseases
Annual forum for affected parents, professionals and researchers with expert presentations, current study results, panel discussions and participation on site or via livestream.
KMSK Knowledge Books on Rare Diseases
Free knowledge books on everyday life, genetics, therapies, psychosocial challenges and case management for affected families and professionals.
KMSK Knowledge Platform for Rare Diseases
Free digital knowledge platform in German, French, Italian and English with information for affected families and professionals.
Digital KMSK self-help offering
Closed online self-help group on Facebook for mothers and fathers of children affected by rare diseases, with exchange of experiences, tips and mutual support.
Care for Rare Navigator
Digital, AI-supported counselling service for families with rare diseases to help them navigate everyday life, identify stressful situations early and be referred to specialist services.
KMSK SELFCARE Magazine on Rare Diseases
Free magazine on current topics related to rare diseases, produced in collaboration with affected families and featuring personal reports and expert articles.
Awareness and media work on rare diseases
Raising awareness among the public and professional circles through media presence, campaigns, video clips and themed activities on rare diseases.
Reviews

Aggregated rating

Aggregated rating
5
of 5

Aggregated from 23 reviews across all connected sources

Sources
GGoogle523
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PProvenExpertSoon

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Location

Poststrasse 5
8610 Uster
Opening hours
Mon
08:30 - 17:00
Tue
08:30 - 17:00
Wed
08:30 - 17:00
Thu
08:30 - 17:00
Fri
08:30 - 17:00
Sat
Closed
Sun
Closed

At a glance

Legal form
Association
UID
CHE-412.363.084
Founded
2014 · 12 years
Last commercial register change
May 29, 2024
Employees
11 to 20

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